Tuesday, August 20, 2013

Sorry It's Been So Long

Hey guys, sorry it's been so long.
We've been hit with so much medical going on that I feel like I can't see straight.
Some has to do with me, I had a minor routine surgical procedure (about every six months) and something happened that never happened before, the knicked a nerve that goes to my right leg with numbing stuff. When the procedure was done, my left side of my right leg was completely numb. My kids would laugh when my leg would spontaneously give way and I'd spaz comically trying to keep from falling. Then the numbness slowly wore off into excruciating pain. They told me it would take upto two month for the pain to subside. Oh joy. Thankfully they gave me a nerve med that does help but it still hurts.
And now I'm sick. Oh what fun.
This Thursday, we have to leave again for San Francisco for another UCSF appointment. My hubby was officially diagnosed with a rare genetic disorder and so we're going to take the kids and get them tested too as there are some high risks for cancers and other problems (like what my husband has). This disorder is so rare there are only a few dozen reported cases within the U.S.
So there isn't much info that is out there to help us cope with this.
I will not be currently disclosing the actual disease because it is so rare that it would give away my identity to some friends and family and I'm currently not ready to do so.  I might start another blog or something chronicling our issues to help other deal with this. Because the more we know, the more we can figure this out.
My son started school already! Big ol' 3rd grader! Crazy how time flies!
And in about a week my mom is arriving for the big September celebration of both my kid's birthdays (they are 5 years and 364 days apart...we didn't plan that! Lol) and for my son's baptism. He'll be 8 and being we are LDS, kids get baptized at 8 years old or beyond...whenever they choose to.
With my mom coming (and I do love it when she comes) she highly allergic to dogs, which we have two that live in and out of the house...but not in the bedrooms or on the furniture (although they do try!) Which means I have to seriously de-dog the house...and she's allergic to garlic...which is in EVERY dinner meal...it is a staple in the house. *le sigh*.
We are also on pins and needles as we're waiting for my brother to get his kidney transplant. After ten years he's finally at the top again. So, when he gets the call, we have about 8 hours to get him from Vegas to San Francisco.
So if you don't hear from me for a bit, sorry, I'm trying to keep it all together right now and trying to be there for my family.
I do have a great Q&A coming with a reader that grew up Greek Orthodox and is gay. It's a very wonderful story. Juat needa to be touched up...but haven't had the time!
Take care! Love you all!
Jessie

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